Meet Lenny

My name is Lenny

I was born full term- 3 days before Christmas 2023

Even though mummy’s pregnancy was absolutely perfect.. sadly something right at the end happened. It meant I didn’t get enough oxygen supply to my brain which then lead to me having severe brain damage which is medically known as HIE, I then spent 10 weeks in my local hospital trying to get myself strong enough to be at home with my mummy daddy and my big sister and brother but sadly I just kept getting more poorly so had to be taken to a specialist hospital in London for 4 weeks where I was put on lots of medication to keep me as comfortable as possible.

I have had two MRI scans on my poorly brain and both of these have come back with news that I’m most likely going to struggle with lots of things in life including walking and talking, I’m also unable to swallow safely and that’s why I have my feeding tube so my milk and my medication can be put through there into my belly. My poorly brain means every day is a new fight for me and sadly does mean it will be tough to survive into adulthood but as most of my followers already know I’m very strong and have already defied the odds several times and I will continue to do so and I can’t wait to take you all on my journey with me and show you all just how strong I am!

I am Lenny.
Tiny, fragile, silent Lenny.
But in the heart of my family…
I am everything.

lots of love

your little warrior Lenny

Hope

When a child is diagnosed with HIE, the world can feel like it stops. The uncertainty, the fear, the avalanche of medical terms—none of it is easy. But within that difficult beginning, something powerful often emerges: hope.

Hope shows up in many forms.

It’s in the tiny victories—stronger muscle tone, a new sound, a first smile, a longer gaze.
It’s in the dedicated therapy teams who celebrate every milestone like it’s a miracle.
It’s in the research being done every day, opening doors for better outcomes, better treatments, and better futures.
It’s in the parents who learn more than they ever thought possible—and who become the fiercest advocates for their children.
And most of all, it’s in the incredible resilience of the children themselves, who remind the world what strength truly looks like.

No two HIE journeys are the same. Progress is rarely linear. But families are not alone. The community is strong, support is growing, and every single day brings new possibilities.

If you’re walking this path: your hope is valid, your strength is real, and your child’s story is still unfolding. There is room for joy, for progress, for connection—and for a future that’s brighter than the diagnosis may have first suggested.

You are not alone.
And there is hope—always. 💙

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